Do’s and Don’t’s: IEP and 504 Meeting Preprations

With my first 504  and Individual Education Plan (IEP) qualification meeting approaching, I did what any overly prepared, easily intimidated person would do, scour the internet for tips – after all, knowledge is power. I also braved a seminar our school district held to help parents understand the 504/IEP laws, it, unfortunately,  turned from an informational meeting to a platform for other parents to air grievances. Super frustrating for those of us who attended with the hope of learning something.

I wanted to share a few amazing DO’s and DO NOT’s I have found from research and having attended my own 504/IEP qualification meeting.

DO

  • Put together binders with all current information you have to date on your child. (Should your meeting be regarding possibly seeking evaluations I recommend having medical information such as birth weight, length, and term of pregnancy as well as the notes your Pediatrician has on their monthly, bi-monthly, and yearly growth milestones. You can request a copy of this information from your doctor’s office)

Make a MASTER copy for you, one for the teacher, principal, nurse, special education director, and school counselor.  Include a picture of your child doing an everyday task – it helps to put a face to the name plus it “humanizes” your child.

Every binder should have the same sections and information, i.e.,  Psych Evaluation; Occupational Therapy Evaluation; Physical Therapy Evaluation; Doctor Reports; Teacher Progress Report; Teacher Correspondence; Multidisciplinary Evaluation Team (MET) – for the official signed meeting notes); and Notes.

  • Have a firm understanding of the rights and resources that are available for your child.
  • Know the difference between a 504 vs. IEP and which you feel would best support your child.
  • Arrive at your meetings with well thought out ideas or strategies to help support your child and teachers.
  • Prepare to compromise and have realistic expectations of what can be accomplished during school hours vs. at home.
  • Dress appropriately for the meeting. (i.e., slacks and semi-casual top vs. workout clothes) You would think this is obvious, but many parents show up like they are going to the gym or have just rolled out of bed. Your 504 or IEP is an important meeting dress accordingly.

All of these things will help you to be prepared and ready to advocate with confidence!

DO NOT

  • Expect the others at your meeting to have all the answers.
  • Argue about unimportant details. As much as we want the 504/IEP to be the magic wand remember that nothing will be 100% perfect.
  • Expect the school to put in all the effort. It is a two-way street, and a lot of work and time will need to be given by you the parent.
  • Be argumentative. It is easy enough to do, trust me, I wanted to bang a few heads together a couple of times. Keep calm and remember everyone in the room is vying for a spot on “TEAM NINJA,” and working to find the best way to help your little Ninja to be successful.

I know that this time can be super stressful when all you want to do is help your child be as happy and successful as they can be. I promise that is everyone’s goal.

Keep in mind that the qualification meeting for a 504 or IEP is the first step in the process of continued meetings and goal setting. You will want to have lines of communication open between everyone.

I remember the first 504/IEP meeting I felt like I was sitting in front of a firing squad pleading our case. The hoops you have to jump through to obtain a 504 or IEP are intense. Once the meeting concluded, I felt utterly drained. It is tedious, emotional, and demanding. The best news is, you will be one step closer to creating a successful school career for your Ninja. Now that is worth celebrating. Eat some chocolate; you’ve earned it!  

What is Sensory Processing?

The human body is amazing! From the moment we are born it automatically kicks into a full functioning multifaceted working machine. It’s astounding how everything comes together and just works! Well for some of us anyway. 

Sensory Processing:

Sensory processing refers to the way the nervous system receives messages from the senses and turns them into appropriate motor and behavioral responses.

Now that we have a textbook definition of what sensory processing is let’s play a game. Question: How many senses make up our sensory processing?

Did you think 5?

I’m sorry but the answer is 7! 7! and if just one isn’t working correctly…well if you’re exploring what Sensory Processing Disorder (SPD) means, then you’ll start to have an idea of the impact.

Internal and external environment is processed through the following

  1. Vision (ocular)*
  2. Hearing (auditory)*
  3. Taste (gustatory)
  4. Smell (olfactory)
  5. Touch (tactile)*
  6. Movement (Vestibular)*
  7. Joint and Muscle Awareness (Proprioceptive)*

The stars next to each of the senses are areas in which my child struggles; some areas more than others, but they all interrelate.

SPD can affect people in only one area or-like my child-in multiple. While no child will experience SPD the same as another, they are put into two groups, and in some cases, they can overlap. There are the Sensory Seekers and Sensory Avoiders. For example, my child does not like loud, noisy environments-avoider, where on the other hand he seeks deep pressure-like hugs or tightly fitted clothing-seeker.

What causes SPD?

The STAR Institue for Sensory Processing Disorder and their collaborators have been studying this very question. And so far their research suggests that it is inherited. So all you parents out there asking “was it something I did?” the answer is no. It is a DNA thing. Other factors are complications with a pregnancy or birth, as well as some environmental factors. (for more information check out spdstar.org it’s fantastic!)

Bottom line

It is unfortunate that children-like my own, suffering from SPD, are often times misdiagnosed – and therefore often inappropriately medicated- for ADHD. SPD can look like Autism Spectrum Disorders or even ADHD. I was told by two teachers that my child could have ASD or ADHD (good thing they aren’t doctors.) Remember, YOU- the parent! not Grandma, or Auntie or even the teacher knows your child better. If you feel like your child could have any kind of sensory delay speak with your child’s doctor. Be prepared to hear that it is “normal.” My pediatrician is an expert when it comes to diagnosing ear infections, not so much when it came to SPD-he totally missed it. We actually avoided our doctor altogether and took our child to get full evaluations from a psychologist. Whatever you decide to do, know that you are the only one that can/will advocate for you child.

photo credit: Johannes Plenio